Joe Wigdahl 28/5/14 Joe Wigdahl 28/5/14

TV interview with Kirrilee Edwards' mum

I was interviewed the other day for the tv program Studio Ten by Sarah Harris and the legendary Ita Buttrose about my prize-winning of image "Family Loss". I shared the couch with Kirrilee's mom Jo Edwards and we spoke about the experience.

Joe Wigdahl 17/5/14 Joe Wigdahl 17/5/14

Winner of the 2014 Head On Photo Festival Portrait Prize

Portrait of Kirrilee Edwards, winner of the 2014 Head On Photo Prize

I was thrilled last night to learn that I had won the grand prize for the 2014 Head On Portrait Prize for this image:

The image came from a story that I shot for Good Weekend Magazine about the children's hospice organization Bear Cottage and some of the families who rely on their resources and care. This image in particular came as a result of a wonderful experience meeting the family of Kirrilee Edwards. I felt really welcomed to be with them, to feel their warmth, their sense of humor and love. The Edwards family is a big family and they faced a profound number of struggles because of Kirrilee's devastating illness, but what I saw was an incredible closeness. I felt the best way to give the sense of this family was to show how closely connected they were to Kirrilee and each other. A few months after I shot this image Kirrilee passed away.

I feel an immense sense of gratitude that the Edwards family would let me into their home, welcome me in the way that they did and allow me to be a part in telling their story. For that reason I'm giving half of the prize money that I've won to them. I'm including information below to make donations to Kirrilee's family and Bear Cottage.

Make a Donation to the Edwards family via direct deposit: Troy Edwards Commonwealth Bank of Australia BSB: 062 601 Account: 103 506 78 Memo: Kirrilee

Make a Donation to Bear CottageInformation on Bear Cottage

You can read my original blog entry here about Kirrilee, the shoot and the other families: http://www.joewigdahl.com/sick-kids/.

UPDATE 21/05/2014: Several news outlets who have picked up this story have erroneously stated that Kirrilee was dying or on her deathbed when this image was taken and this is not true. She was at home and healthy at the time of the photoshoot. It is true that a few months after I shot this image Kirrilee passed away at Bear Cottage.

Joe Wigdahl 5/4/12 Joe Wigdahl 5/4/12

Sick Kids

Good Weekend had an assignment for me a few weeks ago to cover a story about several families with children who are critically ill and have terminal illnesses. In two cases the children were born with a devastating disease that made it unable for them to develop mentally and physically as a normal child would. In the case of the third child, Kirrilee had led an active, vibrant childhood and then when she was 12 suddenly suffered a mysterious brain illness that left her profoundly impaired and gravely ill for the last 6 years. Her illness requires 24 hours of constant observation and care, most of which is provided by her mother. Update: a few months after writing this article Kirrilee sadly passed away.

Often when I'm asked to shoot something for an assignment it doesn't occur to me how odd it is that I'm a total stranger that people let into their homes. I chat for a while, maybe set up some lights, take some pictures and then leave. It's rare that I get to read a story before I have to shoot for it so I often walk into a shoot situation not really knowing exactly what it is I'm covering. Usually the people I'm taking pictures of aren't familiar with shoots so they don't have a lot of time set aside for me to take pictures and it's pretty hard for me to impose more than an hour or two of shooting so I often have to work fast and thoroughly while trying to keep the subject relaxed.

In each case when I met the families for this shoot I knocked on the door with a sense of apprehension about what I was walking into. How sick would the child be? What would the families be like? Would they be sad? Angry? Would I have to tiptoe around certain subjects? Do they really even want me to take pictures?

As I walked through the front door I was thoroughly surprised at how welcoming and loving each family was and I immediately felt a warmth that I don't often get right away when walking into a stranger's home. I heard stories about 24 hour care, constant trips to hospitals, emotional turmoil, exhaustion and alienation but I also witnessed deep love, acceptance and thriving senses of humor. I was surprised at how often the parents and siblings of these sick children were saying things that had me cracking up. They seemed glad to have me come take pictures so that other people could learn about their stories. I felt lucky to get to meet these families and I really wanted to hang out all day with them. I've posted a video of a Kirrilee's brothers performing a dance routine that they do to keep the family entertained.

http://vimeo.com/39806546

At the end I felt like it was a tough story to shoot because my wife and I had just given birth to a daughter a few weeks before and we had been going through all of the ups and downs of new parenthood. We were dealing with the massive adjustment in sleep loss and lifestyle change and that feeling that we had no idea what were doing. I know that both my wife and I would look at our little girl and feel an enormous sense of love, responsibility and hope for the kind of parents we would be and the type of person our child would become. Seeing these sick children made me think about how families adapt when plans suddenly change and how they deal with the bumps and bruises of a life they didn't expect.

All of these families have needed the professional and medical support of Bear Cottage, an institution in Manly, NSW Australia dedicated to serving children and families of children with life limiting illnesses. Donations to Bear Cottage can be made here: https://support.bandagedbear.org.au/donation-bear-cottage

For more information about Bear Cottage, please go here: http://www.bearcottage.chw.edu.au/